The primary mission of the BRP Alliance is to empower people and families who are affected by BRP and other neurological itches. .
We are an informal, all volunteer group of patients and supporters distressed by lack of research and understanding of BRP. We aspire to organize into a nonprofit rare disease advocacy organization.
No one even knows how many we are. Most researches think we are rare even as two thousand people have joined three very active online BRP support groups. Our common reported experience is one where our physicians have never heard of BRP, we get misdiagnosed, we are presented with a lack of evidence-based treatment options, and our suffering is often misconstrued by employers and even spouses as neurosis.
So sufferers around the world scratch ourselves bloody and suffer the emotional trauma of suffering, isolation, and marginalization. We aspire to change some of this.
Our ultimate goal is to organize as a nonprofit foundation whose mission is to create better global awareness, diagnosis, research, and treatment for Brachioradial pruritus (BRP) and Neuropathic itch. We propose to do this by organizing a BRP Alliance that connects patients, researchers, and medical professionals committed to the better awareness, understanding, and treatment for BRP.
Here’s how you can join us, your privacy respected, there are never any dues or fees:
What can you do!