Update September 2021: We are currently working with a group of research scientists who are preparing a global survey of neuropathic itch patients. Please fill out the Contact Us form and you will be emailed a link to the survey.
My name is Denis Eirikis. When diagnosed with this cruel rare disease, I became shocked how isolated, misunderstood, and under-served are neuropathic itch patients.
No one even knows how many we are. Most researches think we are rare even as thousands of us have joined three very active online BRP support groups. Our common reported experience is one where our physicians have never heard of BRP, we get misdiagnosed, we are presented with a lack of evidence-based treatment options, and our suffering is often misconstrued by employers and even spouses as neurosis.
So sufferers around the world scratch ourselves bloody and suffer the emotional trauma of suffering, isolation, and marginalization. I am aspire to change some of this.
My not so secret agenda and ultimate goal is to organize as a nonprofit foundation whose mission is to create better global awareness, diagnosis, research, and treatment for Brachioradial pruritus (BRP) and Neuropathic itch. We propose to do this by organizing a BRP Alliance that connects patients, researchers, and medical professionals committed to the better awareness, understanding, and treatment for BRP.
Here’s how you can join us, your privacy respected, there are never any dues or fees:
What can you do!