BRP Alliance Vision

Update November 2021: 

My name is Denis Eirikis. I am a scientist, an advocate, and a patient. When diagnosed with this cruel rare disease, I became shocked how isolated, misunderstood, and under-served are neuropathic itch patients. More info on me at www.clearlightpr.com.

No one even knows how many we are. Most researches think we are rare even as thousands of us have joined three very active online BRP support groups. Our common reported experience is one where our physicians have never heard of BRP, we get misdiagnosed, we are presented with a lack of evidence-based treatment options, and our suffering is often misconstrued by employers and even spouses as neurosis.

So sufferers around the world scratch ourselves bloody and suffer the emotional trauma of suffering, isolation, and marginalization. 

My not so secret agenda and ultimate goal WAS to organize as a nonprofit patient advocate foundation whose mission is to create better global awareness, diagnosis, research, and treatment for Brachioradial pruritus (BRP) and Neuropathic itch. However, I have shelved plans to organize and want to make clear this site represents my personal observations.

My only agenda is here is to provide useful information and to try to better comment the BRP patient, medical, and scientific research communities.